International FND Awareness Day (April 13), History, Timeline, and How to Observe

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Learn about the history and timeline of International FND Awareness Day, why it is important, and how you can observe the day to raise awareness and support those affected by Functional Neurological Disorder (FND).

International FND Awareness Day is a day dedicated to raising awareness about Functional Neurological Disorder (FND), a condition that affects the functioning of the nervous system and can cause a wide range of physical and neurological symptoms, including tremors, seizures, paralysis, and speech difficulties, among others. The day aims to increase public understanding of FND, reduce stigma, and improve the diagnosis, treatment, and support for those living with the condition. International FND Awareness Day is observed annually on April 13th.

History of International FND Awareness Day

International FND Awareness Day was first observed on April 13th, 2017. The day was initiated by a group of patient advocates, including FND Hope, a US-based non-profit organization that supports people living with Functional Neurological Disorder (FND) and their families.

The date of April 13th was chosen as it is the birthday of Janet Edgett, the daughter of FND Hope’s founder, who was diagnosed with FND at the age of 17. Janet’s story and the challenges she faced inspired her mother and others to create FND Hope and raise awareness about FND.

Since its inception, International FND Awareness Day has grown in popularity and has been recognized by various organizations and individuals around the world. The day is now an important event for those affected by FND, their families, and healthcare professionals who work to support them. It is an opportunity to educate the public about FND, increase understanding and awareness, and advocate for better care and support for those living with the condition.

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International FND Awareness Day Timeline

Here is a timeline of important events related to International FND Awareness Day:

  • 2017: The first International FND Awareness Day is observed on April 13th. The day is initiated by patient advocates, including FND Hope, to raise awareness about Functional Neurological Disorder (FND).
  • 2018: The theme for International FND Awareness Day is “Hope and Healing”. Events are held around the world to raise awareness about FND and provide support to those affected by the condition.
  • 2019: The theme for International FND Awareness Day is “Empowering Patients”. Activities include patient-led conferences, webinars, and social media campaigns to help patients take control of their health and advocate for better care.
  • 2020: Due to the COVID-19 pandemic, many events for International FND Awareness Day are moved online. The theme for the day is “FND in Focus”, with a focus on educating healthcare professionals about FND and improving the diagnosis and treatment of the condition.
  • 2021: The theme for International FND Awareness Day is “FND and Me”, highlighting the personal experiences of people living with FND. Activities include social media campaigns, webinars, and online support groups to provide information and support to those affected by the condition.
  • 2022: International FND Awareness Day is observed on April 13th with the theme “Raising Awareness, Changing Lives”. The day focuses on raising awareness about FND and advocating for better care and support for those living with the condition. Activities include virtual conferences, social media campaigns, and fundraising events to support FND research and advocacy efforts.

How to Observe International FND Awareness Day

There are several ways to observe International FND Awareness Day and support the cause of raising awareness about Functional Neurological Disorder (FND). Here are a few ideas:

  1. Spread the word: Share information about FND on social media, your personal blog, or in your community. Use hashtags like #FNDawareness, #FNDHope, and #FNDinFocus to help raise awareness.
  2. Attend an event: Check if there are any local or virtual events scheduled for International FND Awareness Day. You can join a support group, attend a conference or webinar, or participate in a fundraising event to support FND research and advocacy efforts.
  3. Educate yourself: Learn more about FND and how it affects those living with the condition. Read articles, watch videos, and talk to people affected by FND to gain a deeper understanding of the challenges they face.
  4. Advocate for better care: Speak up for better care and support for those with FND. Contact your local representatives and urge them to support FND research and funding for treatment and support programs.
  5. Donate: Consider making a donation to FND Hope or other organizations that support people with FND and their families.
  6. Wear purple: Wear purple on April 13th to show your support for FND awareness.

By taking these steps, you can help raise awareness about FND and contribute to improving the lives of those affected by the condition.

Why International FND Awareness Day is Important

International FND Awareness Day is important for several reasons:

  1. Raises awareness: Many people are not familiar with Functional Neurological Disorder (FND) and the challenges it presents to those living with the condition. International FND Awareness Day provides an opportunity to educate the public about FND and increase awareness.
  2. Reduces stigma: FND is a complex condition that can be difficult to understand, and many people with FND face stigma and discrimination. By raising awareness, International FND Awareness Day helps reduce the stigma and discrimination faced by people with FND.
  3. Advocates for better care: Many people with FND struggle to receive a proper diagnosis and access to appropriate care and support. International FND Awareness Day provides a platform to advocate for better care and support for those living with FND.
  4. Provides support: For those living with FND, International FND Awareness Day can be a source of comfort and support. It provides an opportunity for people to connect with others who are going through similar experiences and to find resources and information to help manage their condition.
  5. Advances research: By raising awareness and advocating for more research funding, International FND Awareness Day can help advance our understanding of FND and improve treatments and outcomes for those affected by the condition.

Overall, International FND Awareness Day plays a crucial role in improving the lives of those affected by FND and advancing our knowledge of this complex condition.

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